Upledger Cranio-Sacral Therapy see "Cranial Sacral Therapy" under "Treatment". Upledger is the name of a person who sells training in the methodology to therapists. Vineland Adaptive Behavior Scales test sometimes used to evaluate students possibly requiring special education. _________________________________________________________________ _________________________________________________________________ Autism FAQ - Popular Attitudes and Entertainment _________________________________________________________________ Autism has caught the popular fancy since it was identified. Given how rarely it occurs, it receives a lot of attention because people find it fascinating. There are a number of popular books written by autistic's parents etc. Also, there have been a number of movies and TV shows that portray autism. Given the changes in views on autism as well as the fact that a lot of non-experts like to state their opinions on it, as well as the fascination of the subject, a large percentage of the general public has faulty and/or dated views of autism, its causes and cures. Some recent accurate portrayals in popular entertainment such as Rain Man. have helped this situation. There are accounts & stories of autistics being cured. One must that the reported instances of cures are rare at best and it is not always clear that the person cured was originally autistic. Also there are accounts of people who are not autistic in the sense of "early infantile autism" but are either described in the account or in some reviews as "autistic", perhaps in reference to the more general, dictionary-definition of autism meaning "absorption in fantasy". Such accounts may be true-to-life and/or inspiring, but are portraying something else. Given the relative rarity of autism, it gets a lot of attention. Often a lot of attention is given to the education of autistics perhaps because they show signs of potential if it could only be unlocked, and perhaps because the syndrome is naturally fascinating to people. In fact, there have been parents who tried to get their children classified as autistic specifically because the services provided by their school district are better for autistic children than for mentally retarted children. Given the relative rarity of autistic children, on the order of one in 1000, the fact that one in three children basically doesn't succeed in high school (either fails out, drops out, graduates without really achieving high-school-level learning, sometimes going into a life of unemployment, crime, etc), though autistic children deserve attention, the case is sometimes put forward that society in general is ignoring the big and boring problem in favor of the small but interesting one. Accounts See also section below "Bibliography". Articles Annabel Stehli. "Fighting for Georgie", Readers Digest (?). Article on same material as Annabel Stehli's book, The Sound of a Miracle. Jacquelin Gorman. "The Seeing Glass", Readers Digest (July 1997). Article on the same material as Jacquelin Gorman's book, The Seeing Glass. Books If you read this on the web, the ISBN numbers are links to Amazon.com which might offer the book for sale. Christina Adams. A Real Boy: A True Story of Autism, Early Intervention, and Recovery (Berkley Trade, 2005). ISBN: 0425202437 (paperback, 336 pages). [autism,account] Anne Addison. One Small Starfish (Future Horizons, 2002). ISBN: 1885477872 (hardcover, 373 pages). [autism,aspergers,account,parent,adhd] Charles A. Amenta, III. Russell is Extra Special: A Book About Autism for Children (New York: Magination Press, 1992). Ages 4-8. A sensitive portrayal of an autistic boy written by his father. A physician, Amenta skillfully weaves relevant factual information about autism into his narrative using clear language that children will easily follow. A wonderful book for children. ISBN: 0945354444 (paperback); ISBN: 0945354436 (hardcover). [autism,account,children] Margaret Anderson. Tales from the Table: Five Accounts of Lovaas Intervention With Children on the Autistic Spectrum (Jessica Kingsley Pub, forthcoming). ISBN: 1843103060 (paperback, 160 pages, due 5/15/2006). [autism,account,behavioral] Linda Andron, editor. Our Journey Through High Functioning Autism and Asperger Syndrome: A Roadmap (Jessica Kingsley Pub, 2001). Forewords by Tony Attwood and Liane Holliday Willey. ISBN: 1853029475 (paperback, 160 pages). [autism,aspergers,account] Cindy N. Ariel, editor & Robert A. Naseef, editor. Voices from the Spectrum: Parents, Grandparents, Siblings, People With Autism, And Professionals Share Their Wisdom (Jessica Kingsley Pub, forthcoming). ISBN: 1843107864 (paperback, 256 pages, due 2/15/2006). [autism,account,family] Karen Armstrong. The Spiral Staircase: My Climb Out of Darkness (Knopf, 2004). Karen Armstrong has written other books about religion. This is a memoir of some of her own soul searching. Included are some experiences helping take care of an autistic young man. ISBN: 0375413189 (hardcover, 336 pages); ISBN: 0007122284 (hardcover, HarperCollins, 2004); ISBN: 0385721277 (paperback, 336 pages, Anchor, 2005); ISBN: 1594150672 (large print paperback, 530 pages, Walker Large Print, 2005); ISBN: 0060594381 (abridged audio CD, HarperAudio, 2004); ISBN: 0060587040 (abridged audio cassette, HarperAudio, 2004). [autism,account] Maxine Aston. Aspergers in Love: Couple Relationships and Family Affairs (Jessica Kingsley, 2003). ISBN: 1843101157 (paperback, 232 pages). [autism,aspergers,adult,account] Connie M. Aull. Letting Go of Jason: A Young Man with Asperger's Syndrome and Bipolar Disorder (iUniverse, 2005). ISBN: 0595342132 (paperback, 108 pages). [autism,aspergers,disability,account] Autism National Committee. New Stories for a New Day. [autism,account] Virginia Mae Axline. Dibs in Search of Self (Ballantine, 1964). The author is associated with Play Therapy and wrote a book on the subject. The story is about Dibs who the book does not label autistic, but though the book describes him to be emotionally disturbed, the symptoms described include those associated with autism. ISBN: 0345339258 (paperback, 220 pages, reissue edition 1990). [autism,account,play] A. Jean Ayres, Robert R. Erwin & Zoe Mailloux. Love, Jean: Inspiration for Families Living with Dysfunction of Sensory Integration (Crestport Press, 2004). Excerpts from Jean Ayres' letters with commentary. ISBN: 097250981X (paperback, 150 pages). [autism,si,treatment,account] Caspian Banki. What Autism Means to Me (Lifelight Books, 2003). ISBN: 0974380105 (paperback, 40 pages). [autism,account] Judy Barron & Sean Barron. There's a Boy in Here (Chapmans, 1993). Sean Barron and his mother, Judy Barron report on their experiences with autism. Sean has autism. His is one of very few autobiographical accounts. And it gives unusual, exceptionally clear insights into the disability and its many manifestations. There is much in this book that supports what has been seen through facilitated communication. ISBN: 1885477864 (paperback, 279 pages, Future Horizons, 2002); ISBN: 0671761110 (264 pages, New York: Simon & Schuster, 1992); ISBN: 0380722925 (paperback, Avon Books, 1992, reprint). [autism,account] Dorothy Beavers. Autism: Nightmare Without End (Ashley Books, 1981). ISBN: 0879491671 (hardcover). [autism,account] Carolyn Betts. Label Me Jeff (NSAC, 1979). [autism,account] Carolyn Betts. A Special Kind of Normal (Scribner, 1983). Revised version of Label Me Jeff. ISBN: 0684177781 . [autism,account] Tom Billington. Separating, Losing and Excluding Children: Narratives of Difference (Falmer Pr, 2000). ISBN: 0415230888 (hardcover, 192 pages); ISBN: 0415230896 (hardcover, 192 pages). [autism,account,se] Jen Birch. Congratulations! It's Asperger Syndrome (Jessica Kingsley, 2003). ISBN: 1843101122 (paperback, 270 pages). [autism,aspergers,account] Lucy Blackman. Lucy's Story: Autism and Other Adventures (Book In Hand, 1999). ISBN: 0646374087 ; ISBN: 1843100428 (paperback, 288 pages, Jessica Kingsley Pub, 2001). [autism,account] Cherlene Brandl. Facilitated Communication: Case Studies -- See Us Smart! (Ann Arbor, MI: Robbie Dean Press, 1999). http://www.bookmasters.com/RobbieDeanPress [autism,fc,account] Ellen A. Brantlinger, Susan M. Klein & Samuel L. Guskin. Fighting for Darla : challenges for family care and professional responsibility : the case study of a pregnant adolescent with autism (New York: Teachers College Press, 1994). 161 pages. [autism,account] John Brine & Patricia Brine. Confusion, Loneliness, Depression: Asperger's Syndrome - A Journey (2000). [autism,aspergers,account] Gary Brown. Little Bubba's Not Ready for National Yet: Case Histories of Kids with Autism and Other Neuropsychological Disorders (2001). http://store.yahoo.com/aba4autism-store/littlebubba.html [autism,account] Rhonda Brunett. From Autism to All-Star (Specialty Publishing Company, 2004). http://www.autism2allstar.com ISBN: 0975519913 (electronic, 123 pages). [autism,account] Jean Bryant. The Opening Door (1993). ISBN: 0646158635 (paperback, 229 pages). [autism,account] Howard Buten. Through the Glass Wall: Journeys Into the Closed-Off Worlds of the Autistic (Bantam, 2004). ISBN: 0553803468 (hardcover, 192 pages); ISBN: 0553382322 (paperback, 192 pages, Bantam, due March 2005). [autism,account] Mary Callahan. Fighting for Tony (New York: Simon & Schuster, 1987). Describes mother's experience dealing with her son's cerebral allergies & the son's dramatic improved after cow's milk was eliminated from his diet. ISBN: 0671632655 (172 pages); ISBN: 0671644564 . [autism,account,allergy] Lindsley Cameron. The Music of Light: The Extraordinary Story of Hikari and Kenzaburo Oe (Simon & Schuster, 1998). About the acclaimed autistic composer Hikari Oe, and his relationship with his father, the Nobel Prize-winning author Kenzaburo Oe. To explain the title, "Hikari" means "light". See also Kenzaburo Oe's A Healing Family. Two CDs of Hikari Oe's music are available (Denon 78952 and Denon 78053). ISBN: 0684824094 (hardcover, 256 pages); ISBN: 0783802862 (hardcover, large print, 273 pages). [autism,account,disability] Richard W. Carlson. Poems and Short Stories About My Brother Kevin Who Has Autism: Entertainment for Boys and Girls Ages 6 to 10 (Writers Club Press, 2002). ISBN: 0595228453 (paperback, 128 pages). [autism,children,account,poetry] Mary W. Carpenter. Rescued by a Cow and a Squeeze (PublishAmerica, 2003). A book for children about Temple Grandin. ISBN: 1591298806 (paperback, 47 pages). [autism,account,children] Denise M Carrier. Chase of a Lifetime: A Journey through Therapeutic and Academic Strategies for Children on the Autism Spectrum (iUniverse, 2003). ISBN: 0595290337 (paperback, 304 pages). [autism,account] Kathleen A. Chara, Paul J. Chara, Jr., Karston J. Chara, J. M. Berns & Angela Litzinger. Allergy Busters: A Story for Children with Autism or Related Spectrum Disorders Struggling with Allergies (Jessica Kingsley Publishers, 2004). Aimed at ages 9-12. ISBN: 1843107821 (paperback, 61 pages). [autism,children,account] Eric Y. Chen. Autism & Self Improvement: My Journey to accept Planet Earth (Singapore: Kentrich Trade Press, 2007). http://iautistic.com ISBN: 9810589379 (paperback, 153 pages, ISBN-13:978-9810589370). [autism,account] William Christopher & Barbara Christopher. Mixed Blessings (Nashville: Abingdon Press, 1989). 224 pages. TV's Father Mulcahy of M*A*S*H and his real-life family share the story of raising son, Ned, who has autism. The Christophers used the intensive and controversial Doman-Delacato techniques to educate and treat Ned at home. The book has a moving section on Ned's troubled adolescence, when he developed epilepsy and violent rages, and the family's search for a group residence that would fit Ned's needs. ISBN: 0380709996 ; ISBN: 0687270847 . [autism,account] Paul Collins. Not Even Wrong: Adventures in Autism (Bloomsbury USA, 2004). The 2005 version is titled Not Even Wrong : A Father's Journey into the Lost History of Autism. ISBN: 1582343675 (hardcover, 256 pages); ISBN: 1582344787 (paperback, 256 pages, Bloomsbury USA, 2005). [autism,account] James Copeland. For the Love of Ann (London: Arrow books, 1973). Based on the diary of Ann's father, Jack Hodges outlines how they helped Ann break free of her autistic world and join their world. People who object to aversives will not like the methods employed. ISBN: 0099071207 (155 pages); ISBN: 0727801511 (156 pages, London: Severn House, 1976, revised edition); ISBN: 0345253329 . [autism,account] Mary Anne Coppola. Through a Mother's Eyes: A View of Autism. 38 pages. [autism,account] Sharon P. Cowhey. Going Through the Motions: Coping With Autism (PublishAmerica, 2005). The author is autistic. http://www.webspawner.com/users/scowhey/ ISBN: 1413763863 (paperback, 160 pages). [autism,account] Eleanor Craig. One, Two, Three ... The Story of Matt, A Feral Child (McGraw-Hill, 1978). Republished 1991. Presents a case history of a child who is variously described as autistic, schizophrenic, and retarded, who is rescued by the therapist author from his over-protective mother. It's unclear whether she believes that his mother caused all his problems or was merely exacerbating them. The book only reveals in very very small print that it's "a composite of a number of cases of the problems faced by the social service and medical profession in the diagnosis, treatment, and development of capabilities of such children" (i.e. this didn't actually take place). [autism,disability,psychoanalysis,account] Eustacia Cutler. Thorn in My Pocket: Temple Grandins Mother Tells The Family Story (Future Horizons, 2004). ISBN: 1932565167 (hardcover). [autism,account] Richard Anthony D'Ambrosio. No Language but a Cry (Doubleday, 1970). I saw this book categorized as "autistic children". In fact, it is about a child who doesn't speak because she's battered. ISBN: 0385053800 (hardcover). [autism,account] Richard D'Ambrosio. No language but a cry (New York: Dell Pub. Co., 1987). Copyright 1970. 314 pages. Account of treatment of a girl who was mute after severe abuse. It is clear she should not be classified as having autism as generally understood. ISBN: 0440364574 (paperback, Dell, 1979). [autism,account,psychoanalysis] Bill Davis & Wendy Goldband Schunick. Breaking Autism's Barriers: A Father's Story (Jessica Kingsley, 2001). ISBN: 1853029793 (paperback, 400 pages). [autism,account] Janice DeBlois & Antonia Felix. Some Kind of Genius : The Extraordinary Journey of Musical Savant Tony DeBlois (Rodale Books, 2005). ISBN: 1594862737 (hardcover, 256 pages). [autism,account] Maud Deckmar. My Son Fred: Living With Autism (Jessica Kingsley Publishers, 2004). Translated from Swedish I think. ISBN: 1843103125 (paperback, 224 pages). [autism,account] Max Desorgher & Sandra Desorgher. The Power of Exile: Autism, a journey to Recovery (InQuest Publishing, 2002). ISBN: 0620293659 (paperback, 204 pages). [autism,account,nutrition] Maxine DeVilbiss. Billy's Story: A 35-Year Journey with Autism http://members.tripod.com/~KindTree/Billy.html I think the book was created 2000 or before. [autism,account] Kathleen M. Dillon. Living with Autism: The Parents' Stories (Boone, NC: Parkway, 1995). Discusses problems parents of children with autism often have to face (obtaining a diagnosis, confusion over labeling, unanswered questions of cause, grief and sorrow, trials of day-to-day living, trying to get adequate treatment, stresses on the family, uncertain long range forecast, and social stigma) and ways parents have found to survive and transcend these challenges. These issues are then illustrated with 6 case studies of children ranging in age from 6 to 22 years old and exhibiting a wide range of abilities and needs. ISBN: 0963575279 (235 pages). [autism,account] Nancy Douglas. Freedom: Healing For Parents of Disabled Children (forthcoming). Due Spring 2008, [[http://oliveleafministries.com/]] [autism,account] Martha Kate Downey, ed. Tap Dancing in the Night (Phat Art 4). Book on CD: stories, poems, and art relating to people with Aspergers. Aimed at readers aged 7-16. [autism,aspergers,account,children] David Eastham. Understand (Oliver Pate, 1985). 56 pages. A book of poetry developed by a student labeled autistic who uses facilitated communication to express his ideas. His poetry gives insight into the experiences of people labeled autistic. The author was the subject of the book Silent Words. http://www.easyinternet.net/bpublow/silentwords/titles.htm [autism,poetry,fc] Margaret Eastham & Anne Grice, ed. Silent Words: The Story of David Eastham (Ottawa: Oliver Pate, 1992). Also 1990. 236 pages. A true story of the successful education of a non-verbal autistic person (David Eastham, author of Understand) and the techniques through which he learned to communicate. http://www.easyinternet.net/bpublow/silentwords/ [autism,account,fc] Stephen M. Edelson, ed & Bernard Rimland, ed. Treating Autism: Parent Stories of Hope and Success (2003). paperback, 385 pages. http://www.cgiworker.com/treatingautism/ [autism,account] Joanna Edgar. Love, Hope and Autism (National Autistic Society, 1999). http://www.oneworld.org/autism_uk/publs/cata3.html ISBN: 1899280073 (paperback, 110 pages). [autism,account] Lisa B. Elliott. Embarrassed Often...Ashamed Never (Autism Asperger Publishing Company, 2002). http://www.asperger.net/bookstore.htm ISBN: 1931282129 (paperback, 148 pages). [autism,aspergers,account] Peggie Everard. Involuntary Strangers: Autism: The problems faced by parents (London: John Clare Books, 1980). Account by a parent; includes information about the founding of UK's National Autistic Society. ISBN: 0906549108 (hardcover, 240 pages). [autism,account] Christin Fergus. Dylan's Story: Overcoming Autism, A Childhood Epidemic (Mother Necessity, Inc., 2007). ISBN: 0979657903 (paperback, 272 pages, ISBN-13: 978-0979657900). [autism,account] Barbara Fischkin. Dan and Joe; A Young Man with Autism and His Life Coach Enter the Working World (forthcoming). Working title [autism,account] Marc Fleisher. Making Sense of the Unfeasible. [autism,account] Echo R. Fling. Eating an Artichoke: A Mother's Perspective on Asperger Syndrome (London: Jessica Kingsley, 2000). About her son, Jimmy. Foreword by Tony Attwood. http://www.jkp.com/catalogue/autism/fli_eat.html ISBN: 1853027111 (paperback, 200 pages). [autism,aspergers,account] Mark Frankland. Freddie the Weaver: The Boy Who Fought To Join The World (London: Sinclair-Stevenson, 1995). The story of a mother's fight for her adopted son who turned out to have autism; and of that child's fight to master his disability. ISBN: 1856192466 (hardcover, 244 pages). [autism,account] Ray Gallup. Eric's Story: Autism and the Autoimmune Connection http://www.gti.net/truegrit/ [autism,vaccine,account] William Garrison. Small Bargains: Children in Crisis and the Meaning of Parental Love (New York: Simon & Schuster, 1993). Describes the responses of parents to having a disabled, ill, or in any way "different" child. One of the chapters features a boy with Asperger's syndrome. ISBN: 0671786806 . [autism,account,disability] Zachary M. Gartenberg & Jerry Gay, photographer. Mori's Story: A Book About a Boy with Autism (Lerner Pubns Co, 1999). Ages 4-8. Zachary Gartenberg wrote this book while in elementary school about his autistic brother. ISBN: 0822525852 (hardcover, 32 pages). [autism,account,children] Geneva Centre. You Don't Have the Words To Describe What I Experience! The Sensory Experiences of Individuals With Autism Based on First-Hand Accounts (The Geneva Centre). $8.00 for book, $10.00 for tape. (For the publication: write The Geneva Centre, 111 Merton St., 4th Floor, Toronto, Ontario M4S 3A7. Phone 416-322-7877. For the tape write: Audio Archives International, Inc., 100 W. Beaver Creek Rd, Unit 18, Richmond Hill, Ontario L4B 1H4. Phone 905-889-8555 x 22. The tape costs $10.00 plus $4.00 mailing and handling. The booklet costs $8.00. Tape # 941027-130 My Senses Are All Messed Up: Sensory Perception and Autism.) [autism,account] Elizabeth King Gerlach. Just This Side of Normal: Glimpses of a Life with Autism (Four Leaf Press, 1999). ISBN: 0963757849 (hardcover). [autism,account]